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The International League Against Epilepsy ("ILAE") wants you to know how we address privacy issues on website (the "Site"). We have established the privacy policy below (the "Privacy Policy") to explain how your personal information will be used by us. ILAE reserves the right to change this Privacy Policy at any time and your use of the Site constitutes your acceptance of the Privacy Policy and to be bound by its terms, as it may be changed from time to time.

Collection of Personal Information from Site Users

When you register for this Site, ILAE generally collects minimal information to enable you to set up an account so that you can view the videos contained on the Site. ILAE generally obtains personally identifiable information directly through the information that you provide to us. When users or visitors come to the Site, we may collect any of the following information:

  1. Home server domain names, e-mail addresses, type of computer, and type of Web browser of visitors to the Site.
  2. Information knowingly provided by you in on-line forms, registration forms and surveys, including name, address, e-mail and other personal profile data
  3. Aggregate and user-specific information regarding page views.
  4. Geo-location information if you enable your computer or mobile device to send us location information. You may be able to change the settings on your computer or mobile device to prevent it from providing us with such information.
  5. We may use Internet "cookies", web beacons, or other technology to collect information from your hard drives. Cookies or other like technologies save data about individual visitors, such as the visitor's name, password, user-name, and screen preferences. When you revisit the Site, ILAE may recognize you by the Internet cookie or other technology and customize your experience accordingly.

Use of Personal Data Collected

ILAE may use personally identifiable information in a number of ways, such as:

  1. To communicate with you about your account, if applicable, or to communicate information about the Site.
  2. To build higher-quality, more useful services, such as by analyzing usage trends, and by measuring demographics and interests regarding specific areas of the Site.
  3. To provide you with prompt and effective customer service.
  4. To support the operation of the Site (such as account maintenance and record-keeping), troubleshoot problems, resolve disputes, and to enforce our Terms of Use.

Disclosure of Personal Data Collected

ILAE does not disclose, give, sell, or transfer any personal information provided by individuals to ILAE through this Site. ILAE reserves the right, to the extent permitted by law, to disclose personally identifiable information about you to third parties as follows:

  1. With your consent.
  2. As ILAE believes necessary to: (a) comply with law (including court and government orders, and civil subpoenas); (b) enforce or apply ILAE's Terms of Use and other agreements; or (c) protect the rights, property, or safety of ILAE, our users, or others.
  3. If you partake (or we reasonably suspect that you are partaking) in any illegal or potentially illegal activity. We may disclose personal information even without a subpoena, warrant, or other court order, to the extent we feel is necessary to inform and cooperate with law enforcement agencies or other appropriate authorities.
  4. In aggregated form, i.e., information about multiple users collectively without identifying any individual user, such as the total number of visitors to a particular section in a given week.

Third Party Websites

This Site may include links to other web resources. This Privacy Policy does not apply to those other third party sites and ILAE is not responsible for the content of websites to which it links. You should review the privacy and user policies of such third party sites upon visiting.

Opt-Out Right

Users may opt-out of receiving future information from ILAE by contacting ILAE Chapter Services Coordinator, Gus Egan at

Accessing and Changing Your Information

If you are registered user of the Site, you may review and update your information by contacting us as provided above.

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This website is owned by the International League Against Epilepsy. Text on this website, last updated July 15, 2022,
is available under a Creative Commons Attribution-ShareAlike 4.0 International License,
EXCEPTING all videos and images, which remain copyrighted by the International League Against Epilepsy.